Last Thursday I was given the release to go back to work on Tuesday, July 1st by my neurologist. We were very excited about my progress. Then that evening, I started to feel numbness again in my feet and my first two fingers and thumb. I had promised to call my doctor if I felt any sign of relapse, so we had her paged that evening. I went in on Friday morning to see the doctor and start the IVIG treatments again. The doctor has now confirmed that I have the chronic form of Guillian Barre Syndrome. It basically means that it is going to take longer to recover.
I will start having the IVIG treatments weekly and was put on additional medication. We are trying to avoid steroid treatments since it will make me gain weight, and I've already worked hard to take off 30 pounds! I will still be able to go back to work, but I will have to take it easy and watch my work load. At least I don't have to have the central line put back in to have the plasma treatments at this time; however, that will be the next action to take if necessary.
So with all of the that said, we are planning a birthday party for the boys on Saturday. Don't worry, I'm taking it easy and using the whole week to prepare. Richard is even going to let me order the birthday cake. Now you know I'm taking it easy!
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Great to talk with you today! We'll keep praying for you guys. We're glad you caught the relapse so quickly. Tell Richard and the boys hello. Can't wait for you to post some pics of your little guys and their B-Day party!
Love you!
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